We are in the process of organizing our first fundraiser for Lexx. We have created a non-profit organization called "A Life for Lexx" that is hosting this event. There will be dinner and casino games as well as silent auction items and door prizes. The date, Saturday, October 24, 2009. It sure is coming up fast!!! The first $5,000 raised will go directly to the stem cell research in the US that is so close to human clinical trials. They are short the funding, which sucks!! It's hard to believe that a potential cure for this awful disease is being held up because of money!!! Good thing we have Bill Strong. He comes up with these great ideas!! He has a daughter who is only 2 months older than our Lexx, and also has SMA Type 1. He has created this campaign where families sign on to raise $5,000 each, and together we are aiming to raise $100,000 to be used specifically for the stem cell research. Here is a link to the Unite for the Cure website for all the details: http://uniteforthecure.com/ We are currently working on getting all our corporate sponsors, silent auction prizes, door prizes and the grand prize for the poker tournament. It should be a great time!! Maybe we will see you there.
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